disAbility Resource

ALS ASSOCIATION GREATER CHICAGO CHAPTER*
220 W. Huron St., Suite 4003
Chicago, IL 60654
kellie@alsachicago.org
www.alsachicago.org
Whether you’re newly diagnosed, navigating your journey with the disease, caring for a person with ALS, or researching the cure, let us help with the day-to-day challenges of living with als. We provide home visits, lending equipment, support groups, education, and advocacy. There is never a charge for our support, and a dedicated care service coordinator is available in central illinois to assist with your needs at 309-696-7184.

AUTISM PROGRAM AT THE UNIVERSITY OF ILLINOIS, THE*
904 W. Nevada
Urbana, IL 61801
217- 244-1395
theautismprogram@illinois.edu
go.illinois.edu/tap
https://theautismprogram@illinois.edu
The Autism Program (TAP) is a state-wide network of resources for Autism Spectrum Disorders in the State of Illinois. Our mission is to foster development of community networks that promote best practice in the diagnosis, treatment, and education of all children with Autism Spectrum Disorders. Locally we offer social skill groups, playgroup, New Diagnosis orientation, Resource Room, training and technical assistance, and consultations.

AUTISM SOCIETY OF ILLINOIS: C-U AUTISM NETWORK*
P.O. Box 107
Savoy, IL 61874
217- 621-8429
teresa@autismillinois.org
www.cuautismnetwork.org
The C-U Autism Network is a support and networking group for anyone interested in learning more about autism spectrum disorders. Meetings are held from 6:30-8 p.m. at the Stephen’s Family YMCA on the first Thursday of the month; September through May (excluding January). Childcare is offered free of charge to parents attending the meeting. We provide information, education, and networking opportunities for individuals living or working with someone on the autism spectrum through our monthly meetings, conferences, family events, and information exchange on available resources, trainings, interventions, legislation, advocacy, and more via our Facebook page, website, and listserv.

CARLE OSTOMY SUPPORT GROUP*
Digestive Health Center North Tower 1st floor
602 W University Ave
Urbana, IL 61801
383-3080
nancy.bollero@carle.com
Support group for people with ileal conduit/urostomy, colostomy, ileostomy or ileal/colonic J pouches.

CHAMPAIGN COUNTY DOWN SYNDROME NETWORK*
P.O.Box1143
Champaign, IL 61824
217-398-7132
secretary@champaigndsn.org
www.champaigndsn.org
The Champaign County Down Syndrome Network operates as a not-for-profit organization serving families who have a member with Down syndrome. The DSN offers support to families by providing current information for parents, professionals, and the general public. The DSN provides new parent packets, offers social opportunities for peers with Down syndrome, and raises awareness of Down syndrome in our community. The DSN holds workshops and monthly meetings on topics of interest to our members.

CHAMPAIGN-URBANA AREA MULTIPLE SCLEROSIS SUPPORT GROUP*
P. O. Box 533
St. Joseph, IL 61873
217-649-7972
savoymsgroup@yahoo.com
Melissa.mills06@yahoo.com
www.nmss.org
As a group we help individuals living with MS and/or their family members, friends and care partners gain support from others living with MS. More specifically, we share experiences and get feedback, learn from expert speakers and learn about potential opportunities to participate in research. The group meets every second Saturday of each month (except December) 10am-12pm at the First Baptist Church, 1602 S. Prospect Savoy, IL.

CHAMPAIGN-URBANA FIBROMYALGIA EDUCATION & SUPPORT GROUP
C/O Phyllis Sommer, 2103 Rainbow View Dr. 
Urbana, IL 61802-5619
Email: mrsdb@att.net or sommer1@comcast.net 
Local Website: https://carle.org/classes/support-groups/fibromyalgia-support-group.aspx
National Website: arthritis.org
This group provides support for anyone with fibromyalgia, and for their families and friends. Speakers are invited. Meetings include time for caring and sharing. The group meets on the 3rd Wednesday, every other month, beginning in January, from 6:00-7:30 p.m., at Carle - Champaign on Curtis, 2nd floor conference room,1701 W. Curtis Rd., Champaign. 

CU ABLE*
2101 Laurel Park Place
Champaign, IL 61822
815-354-2263
info@cuable.org
Find us on Facebook at CU Able
www.facebook.com/groups/31497831862691
CU Able is a group of parents who are passionate about helping their children with special needs by creating a safe and accepting support network within the local community. The group focuses not only on advocacy and awareness, but also tries to help its members incorporate self-care into their routine by organizing and participating in local events such as mom’s retreats, family dinners, and the Larkin’s Place Parent Network. CU Able is a welcoming group where parents can seek advice and support, share resources, network, and find friendship. Create Awareness, Promote Acceptance, Embrace Love.

DEPRESSION AND BIPOLAR SUPPORT ALLIANCE URBANA-CHAMPAIGN CHAPTER (DBSA UC)*
401A CR 2600 N
Mahomet, IL 61853
810-328-3272
dbsaurbana@gmail.com
http://cudbsa.org/
DBSA Urbana-Champaign meetings are open to people who have depression, bipolar disorder, and/or related mental health problems, whether formally diagnosed or not. We also offer support for the friends and families of those who struggle with these illnesses.

DISABLED AMERICAN VETERANS*
309 Edgebrook Dr.
Champaign, IL 61820
765-365-2761
chancehoover89@gmail.com
DAV.org
The DAV helps all veterans who rate a disability through the VA.

EPILEPSY FOUNDATION OF GREATER CHICAGO*
17 N. State Street, Suite 650
Chicago, IL 60602
312-939-8622
kjanssen@epilepsychicago.org
www.epilepsychicago.org
Created in 1946 as a grassroots effort in Illinois to help people with epilepsy, the Epilepsy Foundation of Greater Chicago is a not-for-profit, incorporated in Illinois, serving 43 counties, offering counseling, advocacy and educational services to people with epilepsy, their families, and the communities in which they live.

GROW IN ILLINOIS
Champaign County Fieldworker
P.O. Box 3667
Champaign, IL 61826
(888) 741-4769
Email: growil@sbcglobal.net
www.growinamerica.org
GROW’s mission is to promote mental health recovery, personal growth, and prevention
within our weekly mutual help support groups and throughout our supportive community. As members, we strive first to take personal responsibility for changing ourselves, and ultimately as leaders we become “gentle builders of a free and whole community” by contributing to the recovery of others. A Monday morning group meets at First Presbyterian Church, 302 W. Church St., Champaign (11:00am.)

ILLINI CHAPTER OF ILLINOIS ASSOCIATION OF THE DEAF*
3901 Summer Sage Ct.
Champaign, IL 61822
217- 689-0821
marietta.coufal@gmail.com
wdnewell64@gmail.com
www.illiniiad.org (chapter)
www.iadeaf.org (state organization)
We advocate for the educational, social, and economic well-being of the Deaf and Hard of Hearing citizens of East Central Illinois. We host two annual fundraising/social events and two annual social events for Deaf and Hard of Hearing families of East Central Illinois. We also partner with the statewide Illinois Association of the Deaf for state-wide issues that affect the Deaf and Hard of Hearing.

MUSCULAR DYSTROPHY ASSOCIATION
115 N. Neil St., Suite 100
Champaign, IL 61820
(217) 351-1853
Email: shodge@mdausa.org
www.mda.org
MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS, and related diseases by funding worldwide research. The Association also provides comprehensive health care and support services, advocacy, and education. Local services include: clinic, support groups, equipment loaner closet, flu shots, summer camp for kids 6-17, and $500 each year for repairs/modifications to durable medical equipment.

NAMI (NATIONAL ALLIANCE ON MENTAL ILLNESS) CHAMPAIGN*
P.O. Box 1514
Champaign, IL 61824
217-419-5345
champaignnami@aol.com
Champaignnami.org
We are an all volunteer group and provide education, support, and advocacy to all persons living in our community who are affected by mental illness. Look for educational meetings at the Champaign Library. Monthly family support groups in five cities: Champaign, Danville, Effingham, Mattoon, and Tuscola. Free educational courses for families of adults and children living with mental illness. Speakers for groups and schools. We have a warmline to help connect with, and navigate, resources for getting help. Call 419-5345 for more information or to get support.

NATIONAL KIDNEY FOUNDATION OF ILLINOIS (Champaign County Chapter) and 2nd Chance Transplant Support Group
Phone: Alissia M. Young, LCSW (217) 328-4100 or Frank Veach (217) 530-2390 
Email: Alissia.Young@fmc-na.com, or frankveach@hotmail.com
www.kidney.org
Our goals are: education/awareness of kidney disease and methods of treatment for kidney failure, promotion of organ and tissue donations, and support for members of the transplant community (recipients, donors, families, and friends). The Kidney Foundation provides support and advocacy for the dialysis community. The Transplant Support Group meets the first Tuesday of every month, 6:00pm. Currently, the meetings are held at Presence Hospital – Heritage Room, and are part support group, part NKFI Chapter business meeting. 

PARKINSON’S SUPPORT GROUP OF CHAMPAIGN COUNTY*
Savoy United Methodist Church
3002 W. Old Church Rd.
Champaign, IL 61822
(corner of Duncan Rd. and Old Church Rd.)
217- 549-6167
carohn@sbcglobal.net
Providing support for individuals diagnosed with Parkinson’s Disease and their caregivers. Weekly meetings are held at Savoy United Methodist Church each Monday from 10-11am. Meetings include information, light exercise, discussion, and socialization. Meetings are open to all.

SPINAL CORD INJURY ASSOCIATION OF ILLINOIS*
P. O. Box 545
Palos Heights, IL 60463
708-671-1808
SCIinjury@aol.com
SCI-Illinois.org
SCIA is a comprehensive resource center for people paralyzed by trauma and medical conditions. SCIA services include Information & Referral, Peer Support Groups, One-on-One Peer Support for persons with injuries and family members and Education on complications of paralysis. Think First, a Brain and Spinal Cord Injury Prevention Program is presented to schools and other groups of young people and senior citizens are the targeted audience for Prevention of Falls.

 

Self Help & Support Groups